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DESCRIPTION:Philly Cure HD\, an organization dedicating to improving the 
 lives of  local families with Huntington's Disease\, will take the next 
 step in the  fight against HD by hosting the second annual fundraiser an
 d awareness  walk at Norristown Farm Park\, May 6 at 1 p.m.\nIn addition
  to the live music\, food and fun of last year\, we will  host a very sp
 ecial guest\, Nancy Wexler\, Ph.D.\, and well respected  Huntington's di
 sease researcher.   Nancy is President of the Hereditary  Disease Founda
 tion\, founded by her father.   Nancy played an important  role in the d
 iscovery of the complex chromosome test which will tell  patients if the
 y will develop Huntington's disease.   In addition to her  role at the H
 DF\, Nancy also is a member of Columbia University's  Neurology and Psyc
 hiatry department.\nHuntington's disease is a hereditary degenerative ne
 urological  disease that usually strikes people in their 30s and 40s\; h
 owever\,  children are not immune. 1 in 20\,000 people will get Huntingt
 on's  disease\; 15 million in the United States.  At present there is no
  cure.\nPhilly Cure HD was started in February of 2011 by a small group 
 of  people in the greater Philadelphia area.  Our mission is to improve 
 the  lives of local patients and families of HD by providing counseling\
 ,  future planning and referral for assistance\, by fostering an HD  com
 munity\, by educating families and the greater community and by  support
 ing HD research. In our first year\, we have been able to make a  genero
 us donation of 30\,000 dollars to the Hereditary Disease  Foundation. Ph
 illy Cure HD has also employed the services of a full time  HD Care Cons
 ultant to assist those individuals and families living with  HD.\nFor mo
 re information on Philly Cure HD\, Inc. and our walk\, please contact Sa
 ndi Zubyk at 215.855.6686 or via email at szubyk@comcast.net.
URL:http://abington.patch.com/events/philly-cure-hd-walk-for-a-cure
SUMMARY:Philly Cure HD Walk for a Cure
LOCATION:Norristown Farm Park: N Wales Rd & W Germantown Pike\, Norristow
 n\, PA
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