Dear Community members,
I am walking in memory of my sister, Arlene, who passed away in November 2010 due to complications from Scleroderma. Scleroderma is considered an orphan disease, and as such, receives a very small percentage of funds earmarked for research. I have agreed to raise $500 to help in the fight against Scleroderma, and would appreciate your donation in any amount.
http://www.firstgiving.com/fundraiser/4rarlene/stepping-out-to-cure-scleroderma-philadelphia-walk
Thank you very much –
Jacqueline
Walk begins and ends at Lloyd Hall, #1 Boathouse
Row. Registration is free. The walk is supported by donations.
Awards given for most walkers. 50/50 raffle and
prize baskets will be raffled.
For additional information or for pledge forms,
contact the Scleroderma Foundation at 856-779-7225or e-mail Chapter@scleroderma.org.
Our website is
www.scleroderma.org/chapter/delaware_valley/
Directions:
Lloyd Hall at Boathouse Row is located across from the Azalea Garden, behind the Philadelphia Museum Of Art,at
26th & Benjamin Franklin Pkwy.
Date and Location:
Sunday, October 14, 2012
Philadelphia,Pennsylvania
Contact
Christine Gaydos
856-779-7225
dvchapter@scleroderma.org
Jacqueline Donaldson
10:19 pm on Saturday, September 22, 2012
WALK THIS WAY ON 10/14/12. What better way to show your support for those who are suffering from Scleroderma and for the families who are missing their loved ones due to this crippling disease. Hope to see you there and thank you for reading my post. - Jacqueline Donaldson
Louis F. Biase Biase Landscaping llc
12:53 pm on Sunday, September 23, 2012
Jacqueline, What time is the event my wife Eleanor has this evil disease we will certainly attend.
Thanks Lou Biase
Jacqueline Donaldson
7:28 pm on Friday, September 28, 2012
Hi Lou! Sorry for replying so late. I am so sorry to hear that your wife, Eleanor is currently suffering from Scleroderma. Evil disease, indeed! I look forward to meeting you both on the 14th. Thank you for your support and please know that you have my full support as well.
Time:
Registration starts at 8:15am - Walk Starts 9:15am. Please register under the team name "TEAM ARLENE".
Directions:
Lloyd Hall at Boathouse Row is located across from the Azalea Garden, behind the Philadelphia Museum Of Art,at 26th & Benjamin Franklin Pkwy. There is limited parking in The Azalea Garden/Water Works parking lots.
Sending positive thoughts your way, Jacqueline - ms.jacqueline@live.com
Christine Gaydos
9:05 am on Saturday, September 29, 2012
Thank you for spreading the word. Scleroderma is not a common disease, but there are many suffering who might enjoy meeting others living with the same challenges. The Walk is a positive, upbeat event for all ages. See you there.
kathy burke
12:01 pm on Thursday, January 17, 2013
need to get help does anyone kno where or near philadelphia where i can get a diagnosis i feel so sick